Administration on Intellectual and Developmental Disabilities
The AIDD is an office within the US Department of Health and Human Services. AIDD is dedicated to ensuring that individuals with developmental disabilities and their families are able to fully participate in and contribute to all aspects of community life in the United States and its territories.
National Dissemination Center for Children with Disabilities
This organization serves the nation as a central source of information on disabilities in infants, toddlers, children, and youth. Here, you’ll also find easy-to-read information on IDEA, the law authorizing early intervention services and special education.
Red Tree House
Redtreehouse.org was created to provide a welcoming and vibrant online community for families and professionals to explore resources to help children and young adults, prenatal through age 25.
Cerebral Palsy Guide
This organization provides free educational information, financial options and emotional support for parents and children across the United States affected by cerebral palsy.
Providing for a child with special needs as he/she grows into adulthood requires planning. A comprehensive plan can evolve over time and should contain elements that fully address three components of the individual’s life. First is the issue of guardianship and how much support in decision making the individual will require. Second is financial security and how this can be achieved through some combination of employment, governmental supports and a special needs trust. Finally the planners must help the individual make life style choices about where and with whom to live and how to pursue things that matter to him/her. Often choices in one domain will impact the others and the challenge is to find the optimal balance. Many advocates and experts in various fields, including attorneys, financial planners and social workers have provided guidance on preparing a comprehensive plan for a loved one with DD.
Providing for a Special Needs Child – Long Term (Exceptional Parent Magazine)
Planning Now (Maryland Developmental Disabilities Council)